(no subject)

[freyakitten]

Managed to mow the lawns today. Yay for me. I haven't had the energy to do so at the same time as the time in which to mow, so it's been several months since the green stuff was last cut. Fortunately, I refuse to water it, so it hadn't grown much over summer, except where next doors' runoff waters the driveway.

Spent most of the rest of the day feeling extremely unmotivated, so I've been scaring myself with similarities between my own symptoms and this. My major question is whether the episode in Surfers' could be classified as stroke-like or another type of seizure. Either way, it's another symptom to tick off (the last ones that don't require more testing). And it makes me look closer at various continuing-to-deteriorate things. I mean, at what age are my eyes supposed to stabilise prescription, anyway? I'm overdue for a new set of glasses by a factor of needing to concentrate to see a street sign on the other side of the road. And just how much time have I been losing lately? Can anyone say 'absence seizures' to go with the uncontrollable isolated muscle twitches? I know I'm losing some, and certainly twitching more than I did when I last had an episode like the one in Surfers'.

Ah well. The genetic testing stuff at the bottom of that page was soothing, even if the prognosis and progression is terrifying. And, frankly, the last definitive test is time.

Comments

[velvetink.livejournal.com]

gee that disease is a bit scary! the odds though for it turning up later in life seem to be less. Have you had a full check up lately? Eyesight can start going wonky from 40 onwards which is normal. (sorry I dont know how old you are).

My lawns need mowing badly now, haven't done them since January.

[freyaw.livejournal.com]

I'm 25, and have been diagnosed with a generic mitochondrial disorder (4-5 years ago). I don't (yet) have anough symptoms of great enough severity for my doctors to pick a particular one.

Screwing with my diet reduced the severity of some symptoms - I'm now on a high carb low protein high vegetable diet, which basically allows me to get out of bed. Almost no chocolate, no lollies, almost no sweet things except for fruit and things sweetened with honey. I notice the exhaustion and pain returning within 48 hours of a major break of my diet. And while I can function with it, I choose not to. As an example, I ate three tiny easter eggs yesterday, and today, my calves and ankles are protesting, a kind of mild pins-and-needles effect.

My eyes started deteriorating at about 8-10 years old. I began to regularly wear glasses at 15. I've had the prescription updated every couple of years since then, except for this last pair, which are four years old, because they cost enough that it was $200 over what my health fund covers (I have almost top cover on extras, because I use it).

I get full checkups with bloodwork annually. Which reminds me, I'm due for follow up bloodwork for the collapse in Surfers'... But I'm never going to remember :( Working on getting a PDA to help me cope with memory lapses. When having a bad day, I can't keep a thought in my head, rather like a goldfish ;)

Mowing lawns is one of those things that just gets shoved aside in favour of more important things. Is it really worth getting up before midday on a weekend? ;P

Contact

[(Anonymous)]

So when was the last time you emailed me, HUH ;)

Bastard

Re: Contact

[freyaw.livejournal.com]

Two minutes ago?!?

Re: Contact

[sandypawozbun.livejournal.com]

Bastard, its quite simple really. You have to READ your emails to know these answers.

Nyer. ;)

[reverancepavane.livejournal.com]

Have you had a recent ECG?

[freyaw.livejournal.com]

Came home from Surfers', told my GP all about it, and he went with blood tests. No ECG, yet. Know any good neurologists? A mito list I'm on suggested going to one to get a more thorough diagnosis or referral.