I'm 25, and have been diagnosed with a generic mitochondrial disorder (4-5 years ago). I don't (yet) have anough symptoms of great enough severity for my doctors to pick a particular one.
Screwing with my diet reduced the severity of some symptoms - I'm now on a high carb low protein high vegetable diet, which basically allows me to get out of bed. Almost no chocolate, no lollies, almost no sweet things except for fruit and things sweetened with honey. I notice the exhaustion and pain returning within 48 hours of a major break of my diet. And while I can function with it, I choose not to. As an example, I ate three tiny easter eggs yesterday, and today, my calves and ankles are protesting, a kind of mild pins-and-needles effect.
My eyes started deteriorating at about 8-10 years old. I began to regularly wear glasses at 15. I've had the prescription updated every couple of years since then, except for this last pair, which are four years old, because they cost enough that it was $200 over what my health fund covers (I have almost top cover on extras, because I use it).
I get full checkups with bloodwork annually. Which reminds me, I'm due for follow up bloodwork for the collapse in Surfers'... But I'm never going to remember :( Working on getting a PDA to help me cope with memory lapses. When having a bad day, I can't keep a thought in my head, rather like a goldfish ;)
Mowing lawns is one of those things that just gets shoved aside in favour of more important things. Is it really worth getting up before midday on a weekend? ;P
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Date: 2006-04-16 02:02 am (UTC)Screwing with my diet reduced the severity of some symptoms - I'm now on a high carb low protein high vegetable diet, which basically allows me to get out of bed. Almost no chocolate, no lollies, almost no sweet things except for fruit and things sweetened with honey. I notice the exhaustion and pain returning within 48 hours of a major break of my diet. And while I can function with it, I choose not to. As an example, I ate three tiny easter eggs yesterday, and today, my calves and ankles are protesting, a kind of mild pins-and-needles effect.
My eyes started deteriorating at about 8-10 years old. I began to regularly wear glasses at 15. I've had the prescription updated every couple of years since then, except for this last pair, which are four years old, because they cost enough that it was $200 over what my health fund covers (I have almost top cover on extras, because I use it).
I get full checkups with bloodwork annually. Which reminds me, I'm due for follow up bloodwork for the collapse in Surfers'... But I'm never going to remember :( Working on getting a PDA to help me cope with memory lapses. When having a bad day, I can't keep a thought in my head, rather like a goldfish ;)
Mowing lawns is one of those things that just gets shoved aside in favour of more important things. Is it really worth getting up before midday on a weekend? ;P